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Joined 1 year ago
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Cake day: June 18th, 2023

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  • Hey everyone! I’m happy to be here. I have ME/CFS and recently got in to see a rheumatologist for the first time. Suspected Sjogren’s (I have many of the symptoms), but my first tests came back negative. Apparently it takes 8 years, on average, to get a diagnosis. For now, loading up on my eye drops / nasal spray / dry-mouth everything at all times.

    I’m also a full-time caregiver to my partner, who is coming up on 3 years of Long Covid + POTS + Dysautonomia + a slew of other related chronic conditions.