Hey everyone! I’m happy to be here. I have ME/CFS and recently got in to see a rheumatologist for the first time. Suspected Sjogren’s (I have many of the symptoms), but my first tests came back negative. Apparently it takes 8 years, on average, to get a diagnosis. For now, loading up on my eye drops / nasal spray / dry-mouth everything at all times.

I’m also a full-time caregiver to my partner, who is coming up on 3 years of Long Covid + POTS + Dysautonomia + a slew of other related chronic conditions.

Hi! I’m a 45 year old amputee. Had an accident in 2015 and after a buttload of surgeries lost my leg. Had a traumatic knee replacement this past December and am in constant pain. Getting a morphine pump soon. I also have a paralyzed neurogenic bladder from my accident. I have an awesome cat and partner.

Hi everyone! I’m an autistic person, I have ADHD, along with a couple of other ones I generally don’t talk about online for various resons.

In a nutshell, a couple of drivers took me out on a bicycle 2/26/14, with a broken neck and back. The bones healed but I have some kind of undiagnosed soft tissue damage that makes it impossible for me to hold posture for more than around one hour. It doesn’t matter if I’m sitting or standing. If I push past this, I am a useless zombie. It will also take me somewhere between a few days to a month to be able to sleep for more than an hour or two after pushing myself to stay upright for too long.

Naturally doctors in the US don’t have a clue what to do with me and neither does disability court. I am stuck living as a burden to my parents waiting for them to die so that I can take up occupation in a ditch somewhere as is the American way.